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Public invited to get involved in dementia research in the West

Press release issued: 10 February 2015

Scientists are inviting members of the public to find out about dementia research in the region at a free event [31 March] which aims to improve patient and public involvement in studies.

Co-ordinated by Dr Sam Creavin at the University of Bristol and Dr Sarah Voss from the University of the West of England, the session will help researchers understand what the key issues are and which areas would most help patients and families.

Dr Voss said: “The aim of the event is for researchers to engage with people who are affected in some way by dementia – for example, they may know someone with the illness or are worried that they might develop it – in order to inform, direct and shape ongoing and future research.

“Leading scientists from the West of England and Wales will give ten-minute talks about their research and then take questions. Members of the public may be asked for their opinion on the research, and will have the opportunity to sign up to hear more about on-going studies in the region.” 

Dr Sam Creavin, an academic clinical fellow based at Bristol’s Centre for Academic Primary Care, added: “Researchers need advice and input from patients, carers, and interested members of the public to help understand what the main issues are. They also need advice to make research work, to make it easy to take part, and to help get their message out. This is called ‘Patient and Public Involvement’ (PPI) in research.

“Most scientists will not be looking to recruit people to their studies at the event, but members of the public will be able to make contact and may be able to sign up to take part in studies at a later date.” 

The event is open to anyone affected by dementia and is being held at UWE’s Exhibition and Conference Centre on Tuesday 31 March from 12 noon to 4 pm. It is free of charge but booking is required – tickets are available online or by calling Clive on tel 0117 414 7531. Lunch will be provided.

Tickets for the event are available online through Eventbrite

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